Always look in the event calendar for the dates on the right hand side (if using a PC or Laptop) or at the bottom (if using a 'phone or tablet). Normally we meet in the Lecture Hall 2 in the Academy on the lower ground floor of the Great Western Hospital in Swindon, but this sometimes changes. Entrance is via the lift in the main Atrium or via the outside door to the car parks. There are numerous Bus services that stop at the Hospital - Swindon's Bus Company services 1, 1A and 12; Stage Coach 80 and 81 (to/from Marlborough) and Connect Minibus 47 (to/from Lambourn). If travelling by Car, there is lots of parking and the cost is currently £1 for 2 hours after 6pm. For 'Sat Nav' users, the Post Code is SN3 6BB. Much more information on directions and parking can be found at https://www.gwh.nhs.uk/contact-us/maps-and-directions/.
The 18th February meeting was a great turnout with 21 members and 6 partners. Within the 21 there were 3 newly diagnosed people (one very recently diagnosed on 17th February). Two speakers from Look Good Feel Better (Michelle Roberts and Trish Rawlins) talked to the Group about Facing Cancer with Confidence. Many of the Group signed up to their next session and a booklet 'Manual for Men' was given to all attendees. If you could not attend but want a booklet, let us know via emailing firstname.lastname@example.org (together with your postal address) and we will send one to you. Alternatively you can visit their site www.lookgoodfeelbetter.co.uk where there is a host of information including some tutorials (https://www.lookgoodfeelbetter.co.uk/mens-tutorials/). Following Trish & Michelle the Group went into normal discussion with lots of experiences being shared with the three new members.
Our first meeting of 2020 (on January 7th) was attended 13 Members and 3 Partners. There were two new Members, one of which was recently diagnosed and having to make some decisions about which treatment pathway to follow. It was a great session with hardly any 'leader' input - once we started talking through our own experiences there was 60 minutes of lively debate. It was a pleasure to watch everyone in conversation and just shows how useful a Support Group meeting can be.
On 10th December 2019 a few of the group got together for a more scocial evening at the Sun Inn, Coate - just down the road from the Great Western. A very pleasant evening that we must do again sometime.
The meeting on Tuesday 12th November was attended by 16 Members (two of which were newly diagnosed). There was also one female family member. Also in attendance were Paula Allen (Macmillan Patient Pathway Facilitator in Urology) and Zoe Thompson a new (to us) CNS within Urology. It was reported that Sam had now formally left her post and that although Kerrie was still around within Urology, Kerrie had moved on to a new role. Siân is the lead nurse with Zoe and another shortly to join being responsible to her. Zoe offered to attend any meetings at our request.
Paula pointed out that her role is not ‘clinical’, but does include the triages all calls and ensures that they are given the correct priority and passed to the right person or department.
The Group fired several questions at Paula and Zoe, the main one being concerns about the move of a patient from a Consultancy appointment system to ‘telephone’ or ‘virtual’ consultancy.
Paula & Zoe assured the group that the move of an individual to ‘telephone’ and/or ‘virtual’ was only done when appropriate and that patients could be moved from the different types of consultancy depending on their need.
Paula also mentioned that there was current debate on how to enshrine Mental Health into the pathway.
In conclusion, the Group asked Paula & Zoe if there is anything that we are not doing … that we could. If there is, then they will advise us.
In the October meeting, Geoff spent some time talking about the recent meeting in Marlborough where Craig Allingham was speaking. We thought it worth leaving this item up on the site.
Craig has written several books and it really is worth a trip to his website. Although you can easily work your way through Craig's site, he has put some good video's on You Tube, primarily to accompany his books, but worth looking at independently. These are a few quick links and should be viewed in this order 1. Anatomy & Palpation; 2. Prostate Recovery Map Level One; 3. Prostate Recovery Map Level Two.
The Prostate & Prostate Cancer - Some facts
24 Jun 2019