News (Page 2)
New Travel and Prostate Cancer Fact Sheet available from PCUK
01/04/19
Dear Support Groups,
Our travel and prostate cancer fact sheet has been updated. It is now available to order and download online. The new version includes:
more information on finding suitable travel insurance an updated travel timeline vaccine information for men who are having/have recently had chemotherapy more practical tips to help men look after themselves while abroad. The web content will be updated over the next few weeks. If you have any questions, please do not hesitate to contact me.
PCUK Need Volunteers to take part in their Late Stage Diagnosis Study
01/04/19
Dear Support Groups,
This is a last call for volunteers to take part in our late stage diagnosis study. We’re looking for another 5 – 6 volunteers to help us with this important study! Point of contact is: martin.abrams@prostatecanceruk.org
Prostate Cancer UK is inviting men diagnosed with late stage (Stage 4) prostate cancer to help us in our mission to tame prostate cancer. As part of this, research is a vital tool in helping to understand the experiences of men. Delving deep into patient experiences helps us understand why things happen and what needs to improve in order to create better outcomes for men.
ICR "5-minute" Survey on Patients' Experience of Access to Cancer Drugs
01/04/19
Hello,
At the institute of cancer research have just launched a survey that I would love your help promoting to patients. We have been working to try and improve the policies around drug approvals to speed up access to the newest drugs for cancer patients. We’ve launched a quick five minute survey to find out about patients’ experiences and opinions around drug access. Please could you share it with your network. We want to hear from as many patients as possible so that we can make the biggest impact.
NHS "How Patients can Access Medicines and Medical Products in the event of a 'No Deal' EU exit"
11/03/19
NHS England have published patient messaging on NHS.uk which sets out how patients can access their medicines and medical products in the event of a no deal EU Exit. A message for healthcare providers has also been published as well as a Q&A for more information for patients and healthcare providers. Please read that information here https://www.nhs.uk/conditions/medicines-information/getting-your-medicines-if-theres-no-deal-eu-exit/
It is also available on NHSE’s website https://www.england.nhs.uk/eu-exit/medicines/
The Q&A is here https://www.england.nhs.uk/eu-exit/medicines/medicines-faq/
Kind regards,
Susan
Susan Drew
Peer Support Officer
Prostate Cancer UK
Movember Foundation Seeks Volunteers for User Testing
11/03/19
*Reponses by 4pm on Wednesday 13 March 2019*
The Movember Foundation is looking for around 6-10 men maximum to take part in user testing of their online Public Facing Tool. Participation criteria:
Men diagnosed with prostate cancer (localised or advanced) and at least two years’ post treatment. Access to a personal computer, and the ability to dedicate at least 1 hour for the exercise/test. If you are interested in taking part, please email Lizzie Ellis at: lizzie.ellis@prostatecanceruk.org
Have you been prescribed Docetaxel for treatment of advanced metastatic prostate cancer?
28/02/19
A new radioactive labelled trace called Prostate Specific Membrane Antigen (PSMA) has been developed which is very sensitive to prostate cancer cells wherever they may be in the body. If you have been prescribed docetaxel for treatment of advanced metastatic prostate cancer and would you be interested in taking part in a medical imaging trial that would involve having three extra scans using the PSMA alongside the usual medical imaging tests, please get in touch with Professor Barnes. She would like to speak to you if you would be willing to:
Discuss and answer questions about the role of nuclear medicine in your treatment; Discuss personal experiences with nuclear medicine tests, that you are willing to share; Help UCL to design a plan that includes 3 extra scans that patients would be willing to participate in.
News Items from Tackle
15/02/19
Some recent news items (click on the links to read more)
NICE Recommends MRI Scans for Suspected Prostate Cancer BEFORE Biopsy European Prostate Cancer Patient Groups call for urgent action on prostate cancer screening Researcher calls for national screening programme to tackle prostate cancer and talks about his project to create a new PSA test to support it Best wishes
Simon Lanyon
Research Study Participants Required
15/02/19
Research Study Participants Required. Caterina Gentili, a PhD researcher from the Centre for Appearance Research (University of the West of England, Bristol), is currently conducting an online survey investigating the psychological and physical challenges that patients diagnosed with prostate cancer experience. The results will be published in Summer 2019 and made available to Tackle. To take part or to find out more, click here.
Tackle Newsletter Now Available Online
15/02/19
Tackle Newsletter. The latest edition is now available on our website and, if you normally receive a printed version, this will be with you shortly. Please do let us know if you would like more or fewer copies.
Outstanding Contribution to Patient Service and Care in Leighton Hospital Urology Department
08/02/19
Dawn Barber (Unit manager), Margaret Bake (specialist nurse) and Team were winners of the Surgery and Cancer Celebration of Achievement Awards 2018/19 in the category Outstanding Contribution to Patient Service and Care. They won for the development of the Urology garden. Photo, from left to right Staff Nurse Carole Jones, Sister Dawn Barbour, Sister Margaret Bake and Health Care Assistant Gilly Booth with the certificate and trophy enjoying the garden. We are very proud of all of them.