News
NHS "How Patients can Access Medicines and Medical Products in the event of a 'No Deal' EU exit"
11/03/19
NHS England have published patient messaging on NHS.uk which sets out how patients can access their medicines and medical products in the event of a no deal EU Exit. A message for healthcare providers has also been published as well as a Q&A for more information for patients and healthcare providers. Please read that information here https://www.nhs.uk/conditions/medicines-information/getting-your-medicines-if-theres-no-deal-eu-exit/
It is also available on NHSE’s website https://www.england.nhs.uk/eu-exit/medicines/
The Q&A is here https://www.england.nhs.uk/eu-exit/medicines/medicines-faq/
Kind regards,
Susan
Susan Drew
Peer Support Officer
Prostate Cancer UK
New Podcast from Pain Concern
11/03/19
I’m sending you this information on behalf of Pain Concern, a UK based charity focused on providing information and support to those who live with chronic pain. This information is not produced by or related directly to Prostate Cancer UK, but may be of interest to your group members. Pain Concern have a radio programme/podcast, Airing Pain, a resource for those living with chronic pain, as well as their families, friends, carers, supporters, employers and health professionals. They’ve recently produced Airing Pain 110: Living with Cancer Pain, in which presenter and producer Paul Evans visited Leeds Beckett University and the University of Leeds to cover living with a diagnosis, what palliative care entails, and non-pharmacological treatments.
Movember Foundation Seeks Volunteers for User Testing
11/03/19
*Reponses by 4pm on Wednesday 13 March 2019*
The Movember Foundation is looking for around 6-10 men maximum to take part in user testing of their online Public Facing Tool. Participation criteria:
Men diagnosed with prostate cancer (localised or advanced) and at least two years’ post treatment. Access to a personal computer, and the ability to dedicate at least 1 hour for the exercise/test. If you are interested in taking part, please email Lizzie Ellis at: lizzie.ellis@prostatecanceruk.org
Have you been prescribed Docetaxel for treatment of advanced metastatic prostate cancer?
28/02/19
A new radioactive labelled trace called Prostate Specific Membrane Antigen (PSMA) has been developed which is very sensitive to prostate cancer cells wherever they may be in the body. If you have been prescribed docetaxel for treatment of advanced metastatic prostate cancer and would you be interested in taking part in a medical imaging trial that would involve having three extra scans using the PSMA alongside the usual medical imaging tests, please get in touch with Professor Barnes. She would like to speak to you if you would be willing to:
Discuss and answer questions about the role of nuclear medicine in your treatment; Discuss personal experiences with nuclear medicine tests, that you are willing to share; Help UCL to design a plan that includes 3 extra scans that patients would be willing to participate in.
News Items from Tackle
15/02/19
Some recent news items (click on the links to read more)
NICE Recommends MRI Scans for Suspected Prostate Cancer BEFORE Biopsy European Prostate Cancer Patient Groups call for urgent action on prostate cancer screening Researcher calls for national screening programme to tackle prostate cancer and talks about his project to create a new PSA test to support it Best wishes
Simon Lanyon
Research Study Participants Required
15/02/19
Research Study Participants Required. Caterina Gentili, a PhD researcher from the Centre for Appearance Research (University of the West of England, Bristol), is currently conducting an online survey investigating the psychological and physical challenges that patients diagnosed with prostate cancer experience. The results will be published in Summer 2019 and made available to Tackle. To take part or to find out more, click here.
Tackle Newsletter Now Available Online
15/02/19
Tackle Newsletter. The latest edition is now available on our website and, if you normally receive a printed version, this will be with you shortly. Please do let us know if you would like more or fewer copies.
Outstanding Contribution to Patient Service and Care in Leighton Hospital Urology Department
08/02/19
Dawn Barber (Unit manager), Margaret Bake (specialist nurse) and Team were winners of the Surgery and Cancer Celebration of Achievement Awards 2018/19 in the category Outstanding Contribution to Patient Service and Care. They won for the development of the Urology garden. Photo, from left to right Staff Nurse Carole Jones, Sister Dawn Barbour, Sister Margaret Bake and Health Care Assistant Gilly Booth with the certificate and trophy enjoying the garden. We are very proud of all of them.
£2,281 for our fight against Prostate Cancer raised by Technoprint !
03/02/19
Leighton Hospital Prostate Cancer Support Group were Technoprint's Charity of the Year in 2018 You might not have heard of Winsford-based printers Technoprint but they are the Largest Independent Supplier of Information Leaflets for the Pharmaceutical Industry in the UK. This means that many of us will have handled (and maybe even read!) one of their leaflets that are to be found in our packets of medication. Last month, our Chairman David Laundon and his wife Wendy went to the Technoprint offices for a special presentation at the Company Meeting to mark the success of the company's fundraising project for 2018.
Congratulations to Winners of Technoprint's Christmas Hampers!
03/01/19
Congratulations to local business owners Ben and Dave, who won special Christmas hampers from Technoprint. The raffle they held to help raise money for our nominated charity of 2018, Leighton Hospital Prostate Cancer Support Group. An impressive total of 318 pounds was raised from the sale of tickets, which is fantastic. Following generous donations of food items from Technoprint staff, they were also able to raffle off seven festive hampers, so thank you for your generosity Team Technoprint!