News this month from a PCUK email...... Long after the cancer has been treated, surgery or radiotherapy can have an impact on men's lives. So we're pleased to share two pieces of good news that may mean fewer side effects for men diagnosed in the future. New guidelines released last week for doctors in England and Wales will encourage active surveillance for men with low risk cancer, which can help delay or avoid treatment side effects. Read our article for details on the other changes being introduced and how we're helping doctors to advise men about treatment options.
News from PC UK of a Podcast available from Pain Concern Dear Support Groups,
I’m sending you this information on behalf of Pain Concern, a UK based charity focused on providing information and support to those who live with chronic pain. This information is not produced by or related directly to Prostate Cancer UK, but may be of interest to your group members. Pain Concern have a radio programme/podcast, Airing Pain, a resource for those living with chronic pain, as well as their families, friends, carers, supporters, employers and health professionals.
A huge vote of thanks to all at Delamere Forest Golf Club for the very generous donation of £4,598 made to our Support Group through all the fundraising efforts of Steve Lamb, the Club Captain for 2018/19, and the charity group consisting of our good friend, Paul Rodway. Funds collected through their charity day and also the Christmas 2018 Golf Club Party auction will help us enormously with our work during 2019. Well done and a big thank you to you all from LHPCSG !
Committee members Shirley and Bob Almquist recently attended the AGM of the Crewe & Nantwich U3A who had chosen our Group as their chosen charity for the year. Bob was presented with a cheque for £327 by their guest speaker Dr Rick Marshall.
During a hugely successful morning at our PSA Testing event in Nantwich Civic Hall last Saturday 13th April, our team tested 494 men between 9:30am and 1:00pm. This was even bigger than the previous record number tested at Burnley Football Club on 13th February 2016. The blood samples taken from the men were couriered to The Doctors Laboratory laboratory in Salford where the PSA level in each sample is measured and sent to the Graham Fulford Charitable Trust in Warwick. Here, the results are correlated with the questionnaire each man has completed and letters detailing the final results are expected to be posted to each man within 7-10 days.
5 Apr 2019
The latest Tackle Talk giving a quick round-up of what's been happening at Tackle in the first quarter of 2019 has just been published. Download and read it here. In it, you can read about our relaunched fundraising campaign Cycle to the Moon. Last year, a number of groups joined in and we had cyclists across the UK supporting us. So why not join us this year. If you would like to go on an organised event rather than organise your own, we have taken some places in a couple of cycling events: the London to Brighton Cycle Ride and the Nightrider in Liverpool.
Dear Support Groups,
Our travel and prostate cancer fact sheet has been updated. It is now available to order and download online. The new version includes:
more information on finding suitable travel insurance an updated travel timeline vaccine information for men who are having/have recently had chemotherapy more practical tips to help men look after themselves while abroad. The web content will be updated over the next few weeks. If you have any questions, please do not hesitate to contact me.
Dear Support Groups,
This is a last call for volunteers to take part in our late stage diagnosis study. We’re looking for another 5 – 6 volunteers to help us with this important study! Point of contact is: email@example.com
Prostate Cancer UK is inviting men diagnosed with late stage (Stage 4) prostate cancer to help us in our mission to tame prostate cancer. As part of this, research is a vital tool in helping to understand the experiences of men. Delving deep into patient experiences helps us understand why things happen and what needs to improve in order to create better outcomes for men.
At the institute of cancer research have just launched a survey that I would love your help promoting to patients. We have been working to try and improve the policies around drug approvals to speed up access to the newest drugs for cancer patients. We’ve launched a quick five minute survey to find out about patients’ experiences and opinions around drug access. Please could you share it with your network. We want to hear from as many patients as possible so that we can make the biggest impact.
NHS England have published patient messaging on NHS.uk which sets out how patients can access their medicines and medical products in the event of a no deal EU Exit. A message for healthcare providers has also been published as well as a Q&A for more information for patients and healthcare providers. Please read that information here https://www.nhs.uk/conditions/medicines-information/getting-your-medicines-if-theres-no-deal-eu-exit/
It is also available on NHSE’s website https://www.england.nhs.uk/eu-exit/medicines/
The Q&A is here https://www.england.nhs.uk/eu-exit/medicines/medicines-faq/
Peer Support Officer
Prostate Cancer UK
PSA Testing at Congleton Golf Club - Open to Non-Members
30 May 2019 19:00–22:00
PSA Testing at Ashton-under-Lyne Golf Club
15 Jun 2019 10:00–13:00
PSA Testing at Warrington Golf Club (Closed Event)
29 Jun 2019 11:00–14:00
Group Meeting at Leighton Hospital, Crewe
13 Jul 2019 10:00–12:00
PSA Testing at Sandiway Golf Club
13 Jul 2019 11:00–14:00