Member Story 1 - First Laparascopic Prostatectomy at Leighton
About 12 years ago my GP had a practice Sister who conducted well man clinics.I saw her on a minor matter, holiday inoculations I think it was.
We had a general discussion about diet, tested my Blood Pressure etc. She then suggested that I had a blood test which included a PSA test. It resulted in a level of 10.7. I had a call from my GP to come in, had a digital examination and was referred to the Urology Unit at Leighton Hospital to be under the care of the then consultant Pradip Javle.
I went through the usual procedures culminating in a diagnosis of T2 prostate cancer confined within the prostate gland. Mr Javle gave me various treatment options but recommend surgery.
At this point I was given a wallet produced by the Leighton Hospital PC Support Group which contained various information leaflets and contact details.
Just before the date of the operation, Mr Javle had been to see Professor Barbie, a prostate cancer specialist, in Paris. Subsequently, Professor Barbie agreed to come to Leighton Hospital to demonstrate a laparoscopic method that had been used in France for some time and I was asked if I would agree to be the patient for this procedure. (All the surgical equipment was supplied from France).
The operation lasted over 8 hours, partly because it was used for teaching purposes, which I was fully aware of.
I came out of surgery without a catheter fitted but had to have one fitted which I hoped would be removed after two weeks but actually lasted four weeks. I was given advice on pelvic floor exercises which I did rigorously. Eventually my continence returned and apart from the very occasional lapse I am completely ‘dry’.
One consequence however is erectile dysfunction. This does not prevent an ‘adjusted’ sex life albeit without penetrative sex.
This is my story and we are all slightly different but if this helps anyone with their fears and concerns then I will be very happy.
Being a member of the Group has helped me greatly and I would strongly recommend that all new patients join. There is much to be gained by doing so.
Kevin. Kevin is happy to offer further information and advice. Click his name for the Group Secretary's email address to ask to be put in touch with him.
Member Story 2 – My journey from TURP to Prostatectomy
In 2006 I had major spinal surgery to relieve compression on my spinal cord and to fuse 3 lower vertebrae and support that fusion with titanium rods and screws.
Some months later, possibly because of nerve damage, I was having problems with urinating. My GP did a digital rectal examination of my prostate and finding it slightly enlarged, referred me to a consultant urologist, Mr Irwin. I had a prostate biopsy, which was clear, but I was advised to undergo a procedure know commonly as a TURP (transurethral resection of the prostate). This involves coring out the centre of the prostate, as you would an apple, to reduce pressure on the urethra, and help urination. It does however result in dry ejaculation, which is something that you can get used to after a while.
The TURP procedure was a success, but the biggest shock was being called back in, just a few weeks later, to be told that in the prostate material removed by the TURP were cancer cells.
In the initial biopsy done beforehand, needle probes had obviously missed the cancerous area. My Gleason score (cancer score) was 3+3. That is, as I understand, the lowest score for a cancerous prostate. The options given to me were watch & wait, radiotherapy or prostatectomy (surgical removal of my prostate). As the Gleason score was low, I chose the watch & wait approach.
For the next 9 years, I went to my local health centre at Ashfields in Sandbach, and had bi-annual blood tests to check my PSA level. In that time my PSA was up and down between at it’s lowest 2.5 and it’s highest 5 and there seemed no great cause for concern.
In August 2015, my latest blood test showed a PSA level of 6.1 and my GP advised that I be referred back to Urology at Leighton Hospital. Another prostate biopsy and MRI scan showed that the cancer was becoming more aggressive and my Gleason score was recalculated at 4 + 3. Action was advised in terms of either radiotherapy or surgery to blitz or remove the tumour.
Choice of Prostatectomy or Radiotherapy?
My wife and I had a consultation with a surgeon, Mr Oates, from Stepping Hill and a consultation with Dr Wylie, from Christies. Both of them put all the facts in front of us, surgery v radiotherapy, but neither of them advised a course of action. I chose the surgery option, and underwent a robotic laparoscopic radical prostatectomy at Stepping Hill Hospital in Stockport in early December 2015, performed by Mr Jeremy Oates. I was in hospital for just one night’s stay and released with 5 small abdominal wounds from the laparoscopic surgery and with a urinary catheter fitted.
Unfortunately after the catheter was removed, I found myself with no bladder control and that is still the case 9 months later, despite regular pelvic floor exercises. I am now being referred back to Stepping Hill Hospital for flexible cystoscopy (an internal camera examination). They will determine from that whether further surgery can help.
OK so my surgery has resulted in incontinence and erectile dysfunction, but both can be dealt with or overcome, one way or another. You just have to adjust your expectations of what can be achieved. It is not the end of the world !
The surgery was not a 100% success, as the tumour was very close to the outer edge of my prostate, but at least I am being regularly monitored again and my PSA is currently almost undetectable at 0.01. I will only know sometime down the line whether or not further treatment is required, but I will deal with that if and when it arises.
Joining the Prostate Cancer Support Group has helped me to find a good solution that enables me to deal with my incontinence effectively and has given me hope, support and a new focus.
My advice to anyone facing Prostate Cancer would be to stay positive, don’t overthink the situation, and just tackle each development one step at a time.
Remember the importance of family support. Like most cancers, it is not just the one person that has to face the fear and anxiety that cancer diagnosis brings.
Many men have been along similar journeys to this and are always willing to share their experiences and support each other where possible.
David. David is happy to offer further information and advice. Click his name for the Group Secretary's email address to ask to be put in touch with him.